Education
If you or a loved one is experiencing a neurological condition, learning as much as possible about it will empower you to be proactive about care. With greater knowledge, you’ll be able to communicate better with physicians, recognize symptoms, and stay informed on developing treatments. Knowledge is power.
We encourage patients to do their own research. We’ve listed several links below to get you started.
Two excellent overall neurological information sites are the Centers for Disease Control and Prevention, and the National Institute of Neurological Disorders and Stroke. If you don’t see the condition you’re researching listed below, you’ll probably find it on one of these two websites:
Also, try Web MD for general information on conditions and mediations/treatments:
For specific conditions, start with the sites below. Each includes a page describing the condition, usually labeled “About” or “Introduction To” the condition.
ALS (Lou Gehrig’s Disease):
Alzheimer’s:
Cerebral Palsy:
Enchephalitis:
Epilepsy:
Huntington’s Disease:
Meningitis:
children.webmd.com/vaccines/tc/meningitis-topic-overview
Migraine/Headache:
Multiple Sclerosis:
www.nationalmssociety.org/chapters/AKA/index.aspx
Parkinson’s:
www.parkinsonsaction.org/PAN-by-State-Alaska.html
Sleep Disorder:
Speech Disorders:
In addition to educational websites, there are many websites associated with charitable organizations that advocate for the rights of people with neurological conditions and for continued or increased research and treatment funding.